Biggest challenge Ds has brought to his family: For me the biggest challenge has been making sure I am doing everything he needs. I guess scheduling his appointments and therapies, making sure I am up to date with all the new advances and paperwork. I feel like it's overwhelming at times. And finally, making sure his older brother is not feeling left out. Balancing everything is still a work in progress for me.
Coolest thing about Connor: EVERYTHING! I just love that kid to pieces, and I would not change a thing about him except maybe more sleep (ha ha!). I just love his eyes, his smile, and his pure joy for life. Watching him reach his milestones is just amazing and so exciting!