Friday, August 22, 2014

20 Months

It's so crazy to me that Camden will be 2 years old in just a few short months. Children grow up so fast. I remember people telling me after Camden was born that the first year was tough. If you can get through those first 12 months then you're good. I remember thinking back then that a year seemed like a lifetime. How on earth was I going to get through it? Obviously we did, and now the second year is almost gone. It has blown by so fast and I'm pretty sure I'll shed some tears when Camden's birthday rolls around. 
I thought I would update on what's going on with the little guy. He had his cardiology appointment in June and as always it was pretty much the same. The VSD is still the same size but it doesn't seem to be causing any issues. I feel like a broken record when I talk about this subject. We are grateful that we can just keep waiting and watching and hopefully at one of these appointments we will get the news that it's closed! The doc thinks that it's causing a little bit of extra fluid to build up in his lungs but not enough to start Lasix back up. If he gets sick a bunch this winter then we may have to re evaluate. Otherwise, we go back in a few months to check again.
He also had a GI appointment in May to check his growth and follow up on his reflux issues. He still is on Prilosec for the reflux and we can't seem to stop that yet. I've tried to wean him off but it always ends up bad, so we will just keep him on it for now. At this appointment he hadn't gained any weight for a few months. This was the first time his GI doc was a little concerned only because he stopped going up on his growth curve. He started Camden on Periactin to increase his appetite but I haven't given it to him. He actually eats pretty good and is always hungry so I didn't see the need. He wanted me to have it just in case. I left that appointment feeling pretty down.
However, at his ENT appointment in July he weighed 19 pounds! He gained one pound in just a couple of months. It probably doesn't seem like much, but when you only gain an ounce in 4 months, it's a ton! I was so dang excited and obviously Camden was too! They don't really track his weight at the ENT but they let me weigh him for my own benefit. It looks like one of his tubes fell out so he will probably get them replaced in a few months. He will probably have his adenoids out at that time too. That stuff we can deal with...easy peasy. We will go back to the GI doc next month to check his growth and I'm hoping this weight gain is correct and we won't have to stress about it for now!
We decided to stop ECI for his therapy a couple of months ago. I felt we were not getting what he needed and it just wasn't working out. We have decided to start a Neurodevelopmental program and I'm pretty excited about it. We had his evaluation a couple of weeks ago and a program was designed for him and it's something I can do at home with me as the therapist. It seems pretty intense and overwhelming but I'm hoping with time I'll get used to it. We haven't started full blast but I will when Carter starts school next week. Camden will see his neurodevelopmental therapist every for 4 months for a re evaluation and she will make changes to his program based on what he needs. Wish us luck!
Camden is still working very hard on pulling to stand. I think he's having difficulties with this because of the way he crawls. It puts his legs in an awkward position so he always gets stuck. We are working on it. It seems weird to say that I have a 20 month old who can't pull up to stand. Oh well, he will get there! I definitely think walking will come very late for this kiddo. Good thing he's light since I'll be carrying him everywhere. ;)
We've kind of had a breakthrough in the language and communication department. This child would not use any sign language until recently. I really was starting to think he wasn't getting it because he wouldn't even try. He did a couple of signs a year ago and then they disappeared. About a month ago he started showing me all the signs he knows. He's such a stinker. He has about 10-15 signs now. He will only do them if I say the word though. He doesn't come up to me and randomly sign something he wants. He still only has about a couple of spoken words but he babbles constantly. He's very good at imitating me and he tries really hard to say certain words. Maybe one day he will let me get all of this on video! Doubt it.
We are also working on using utensils. He grabs it and puts it in his mouth but then immediately throws it on the floor. Ugh. Again...he will get there.
Camden has for sure turned into a toddler. He tests his limits, he gets into everything, and throws some major tantrums. He understands the word "no" but he thinks it's very amusing to ignore it. He will purposely look at us and smile when he's about to do something bad. I haven't quite figured out to handle this. He doesn't understand time out and me being firm is just hilarios to him. Carter was a super easy toddler so this is all new to me!
It's hard to believe summer is over. Carter starts school on Monday and I'm still pretty emotional about it. He is extremely excited though and I can't help but be happy for him. I will miss my buddy, but it gives mommy and Camden lots of bonding time! 

 Camden is turning into Mr Personality!
My handsome little guy in his Uncle Tommy and Aunt Amy's wedding. Growing up way too fast! 
 Since he refuses to take naps a lot these days, he will just pass out when he can't take it anymore. Lol.
Love his smile! Melts my heart every time!
He's getting over his fear of motion!
These two boys adore each other!
I love when all four brothers are together.


  1. Your kids are so cute! We waited it out with Ben's ASD until his last cardiology appointment - where the doctor told us that the hole was smaller, his pressures were better, and we could relax (no surgery!). We still have to go back, but only once/year. Praying that Camden's hole will get smaller! I love hearing how well he's doing. :)

    1. Thanks Deborah! The whole waiting it out thing drives me nuts but it's a better than surgery for sure! Glad to hear Ben's is better! I can't wait to put this one thing behind us.

  2. Loved the updates on Camden. I know some of these things can get discouraging but it will get easier! I think you are doing an amazing job! Keep me updated on how the neurodevelopmental program is going!

    1. Thanks so much Leigh Ann! I love watching your sweet boy grow up because it gives me a small glimpse into the future. ;) I will definitely keep you updated! I'm a little nervous about it, but I think it will be good in the long run! ;)

  3. "We will get there" is my mantra. And Camden me, he will. Owen has always liked to work on one thing at a time, which was frustrating, but that's who he is, so I just go with it!

    The N-D program sounds interesting--hope you will write more about it when you get started.

    1. I always tell myself that he WILL do it. Then there is that little part of me that that wonders "what if he doesn't"? Patience is what I need! The ND program is stressing me out right now. I think it's new and a lot so I feel flustered. I just need to get into a routine!

  4. How is Carter doing in school? Is he liking it so far? I remember how sad I was to see Jordy off to school that first day, I felt like I was losing my little buddy.
    I can't believe Camden is coming up on two! I know those first milestones are hard to wait for...The pulling stand, the steps, first words...But it all comes in time.
    Love the picture of all four boys...Such a lovely family :)

    1. Thanks Jenny! Carter LOVES school so far but is so exhausted when he comes home. I feel like Camden is behind his peers with Ds even so I get discouraged sometimes. :/ You always tell me it will happen and you've been right so far, so I'm just going to keep trusting you! Lol.